Teenager With Butterfly Skin Inspires Others | BORN DIFFERENT

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Despite being born with an incredibly rare condition that causes his skin to blister and tear with the slightest touch – John Hudson Dilgen is inspiring people with his motivational speaking. John, 15, was born with Epidermolysis Bullosa, a condition that leaves him in constant pain and affects only one in every 50,000 children in the United States. On a daily basis, John has to have the majority of his body wrapped in bandages to save him from infections and further harm – around 95 percent of John’s body is covered in open wounds. To find out more, visit: www.ebresearch.org

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The motivational work John does is for the EB Research Partnership: www.ebresearcg.org

Video Credits:
Videographer / director: Adam Gray
Producer: Nora Hakramaj, Ruby Coote
Editor: Beth Angus

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